Death and sprinting

Wafting along Upper Street, I had forgotten all about my meeting until a familiar wall of red swooshed past. With a competitive flicker, I picked up my pace. Fingers carving the air, the pavement charged beneath the balls of my feet. A sweet, powerful sensation. The same surprisingly nippy sprint that, on my Year 9 sports day, elicited a gruff compliment from a boy I fancied that still thrills me over twenty years later. The sprint about which, much like my singing voice, I have always been somewhat vain despite having done precisely nothing to deserve it – least of all practice.

I drew level with the bus two stops down and puffed onboard, holding up everyone’s journey as I rummaged for a card. Settling into a seat I watched the privately historic stretch of pavement fade into the distance and thought “well; that’s probably it then.” And it was: the last time I would ever run. A few days later I walked into St Mary’s Hospital and “walked” out again a fortnight after that, minus a major nerve cluster – and with the crutches that I’ll need forever.

I don’t report this to be pitiful (though I did spend an appropriate amount of time feeling sorry for myself – particularly my foot, which now dangles from my recalcitrant leg like a big gristly sausage.) I’m bringing it up because of the curious and profound effect it had to mark such a significant last-time-ever. I look back now, and marvel. That was running. It was glorious. Then it was over.

Youth is peppered with conspicuous firsts. Your first step, word, day at school. First kiss. First real kiss. First time performing other acts across which we shall draw a veil. I still ecstatically remember my first pizza. First ‘proper’ drink (Castaway; yum). My first day at work. The first time I heard Nirvana, and really fell in love (technically, all one experience).

Unless we’re really trying, however, life’s lasts can tend to sneak past, unnoticed. Your last cigarette may have warranted some ceremony. But what about the last swing you’ll ever sit on? The last pear you’ll eat? The last time you’ll watch Dirty Dancing with any real enthusiasm? Few of these lasts will take place consciously unless we’re watching out for them. One day life’s last shag will come and go, but will you recognise it for what it is? What about the last time you read your favourite book? How lovingly will you peel your last carrot?

We often take a hierarchical approach to love and meaning – from the inner to the outer circles of the heart, allocating significance to our experiences accordingly. Yet when I imagine seeing the man who repairs my boots for the very last time, what pathos the occasion takes on. I might feed a horse, pat her velvety nose and wander off – but what if I knew she was the last horse I’d ever see? There’s something in my eye, just imagining it. Perhaps proximity to ‘lasts’ affords us an important glimpse of how unsettlingly marvellous it is to be doing or seeing anything at all. Conscious completion allows us to look back across the finite set of moments and realise that each was as significant as the other – that is to say, absolutely, fundamentally significant. “These are the days of our lives”, a very wise man once said. Boy did he really, really know what he was telling us.

We modern, goal-oriented humans aren’t typically in the business of noticing life, while it’s happening. It is simultaneously our superpower and the greatest tragedy of our existence.

When I was little, my Dad worked in forests, and I often spent my school holidays playing in them by myself. I particularly remember a fantastic house I once made out of sticks. I was so absorbed in construction that by the time it was perfect, it was also time to get in the car and go home. I never even sat in it. I would like to say that back then I was simply in flow and in nature, enjoying the journey with no thought for the destination. But I suspect that even by age 8 I had acquired precisely the opposite habit – becoming so lost in a plan for the future that I forgot to crawl into the beautiful, imperfect present and make the most of it.

Periodically you will read a blog written by or about a young stranger who is dying or dead, urging you to learn from their experience and live life to the fullest, holding your darlings close and appreciating every last cup of tea for the exquisite mystery that it really is. The piece will be viral and you will be among millions to read it, feel momentarily inspired, and then take fuck-all notice. If you are lucky enough to survive a deadly illness, your own path may yield similar insights. In my experience, these likewise will fade all too quickly. If you live long enough, people you love – perhaps people who are too young to die – will die. When this happens, the intense preciousness of mundane, normal old life will become so painfully clear that you know you will never forget again.

And you might not.
But actually, you still might.

Seeing something once isn’t the same as learning it. For the most part, anything we want to learn, we are obliged to practice. Contemplative traditions are very clear on this. The insight we gain through peak life experiences doesn’t sustain itself. That’s why the practical purpose of meditation isn’t to hang out permanently in bliss but to wilfully rehearse the insights you gained when you were in that altered emotional or cognitive state. Fortunately, we don’t have to sit with our eyes closed in order to practice our love of life (or intentionally recall the occasions when we were thunderstruck by the weirdness of being a conscious entity, pottering around on a planet and cutting our creepy toenails and going to ASDA as if it was no big deal.) We are free to take note of the giant miracle we’re living in as often as we want. The more we do so, the closer we weave the fabric of an enchantment that is our most precious inheritance. Through practice, the road less travelled becomes the way we meet the world, and then life is sacred, even when you are emptying the dishwasher, or the cat has been sick on the rug.

(Musicians of all people know that practice makes perfect. But living from job to job we’re often the worst culprits of all, agonizing over the next audition backstage on the contract of our lives. Only the decisive loss of that whole beloved project to cancer was big enough to shift my thinking. And I wish I could really share it – but realistically, will you practice? You’ll practice your violin. But hopefully not just for the sake of getting the next job. One day you’ll put your guitar back in its case and that will be that – and no single time you played it will have been the absolute destination of your efforts. The pinnacle of your career is a fiction. Great or small, none of our accomplishments are ultimately going anywhere. It’s up to us to notice their everyday preciousness before they are gone.)

Every ‘last’ is a small death, and death itself little more than the last last of all. The more vividly we are able to honour both, the better our chances of really knowing life as it is happening. One day all too soon we will say goodbye to each other and to life for the very last time. But hopefully it won’t be the first time we have really noticed how suspiciously magical it was to be here together, ever, at all.

Cancer and TV, again

Actually it’s less cancer and more TV these days, which is 100% the way round that I prefer. We’ve gone a few rounds since I last wrote, but cancer is currently firmly back in its box. More accurately, it is now in a bucket in a hospital fridge – and crucially, not in me. Nonetheless, sorry that I told you I had a life-threatening illness and then didn’t publish an update for two whole years. Here’s what happened since.

Post chemo in 2018, surgeons opted to remove a lymph node chain in my pelvis, with additional ‘cyber-knife’ treatment to spritz those pesky, hard-to-reach areas. This is as exciting as it sounds: pinpoint-targeted radiotherapy that helps to keep your healthy tissue unfrazzled. Despite their highly inconvenient position, the offending blobs were winkled away without any consequences for my mobility or kidneys, or bum, or orgasms thank you very much.

I spent that Christmas recovering on a diet of Lidl stollen mini-bites and five seasons of Vikings. This smorgasbord of breezy axe murder and inexpressibly fantastic hair is way too sexy for the history channel, and I stand firmly by this use of 75 hours of my potentially short life. The wall-to-wall goring and impaling was remarkably easy viewing – possibly contextualised by my own big grisly wound and leaky bits. Nothing cheers you up quite like the reminder that at least you aren’t recovering from a berserker attack alone in a snow-cave, hiding from a bear. It’s also very motivating to watch TV’s idea of how people with potentially mortal stab wounds can be back shagging by tomorrow teatime with the right attitude.

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By the time all the pillaging and marzipan was finished, I had more or less healed up and was coming slowly back to life. I blew on the embers of work, moved house, bought a Glastonbury ticket (a hubristic move) and as time passed, looked gradually less and less like a cockerel who had lost a fight. I was starting to believe that I had got away with it all when a follow-up scan in May 2019 showed ‘recurrence’ in the same area of the pelvic wall. I was back on chemo as quickly as you can land on the biggest diagonal bastard in all of Snakes & Ladders.

Last time this happened I adopted a policy of total surrender to the unknown and to the sofa, with a very low barrier to takeaway food. This time – not my first rodeo etc – I was confident that things would be different. It’s all about routine after all, isn’t it? I envisaged a regimen of kale smoothies, intelligent podcasts and strictly limited screen-time. I’d probably still be getting quite a lot of work done.

Perhaps unsurprisingly, the arena of my ambition was swiftly redrawn in the shape of pot noodles, Fanta, crying and watching Gavin and Stacey while wearing sunglasses in the dark. I suppose I could have been better prepared, but maybe it was more valuable to enjoy a sunny fortnight in ignorance of what an almighty smackdown chemo would be the second time around. In short, the body remembers, and the body is not at all keen.

Aside from “keep taking the laxatives”, the best piece of advice I’ve ever received about this whole rigmarole is to employ marathon thinking. You don’t have to process the whole ordeal at once – in fact if you try, you’ll lose your shit very quickly indeed. Your only responsibility is to make it through the next hour. And here, TV and crisps can really help you. Got a gruesome problem to ignore? You’re going to want a temporary addiction that won’t be too rough to come back from – preferably which itself makes you feel queasy enough to stop and re-evaluate your life after a maximum of 6 hours. Thanks, TV!

To begin with I was too seasick for the gaudy scarlet world of Netflix, so I eased myself in with Gentleman Jack on iPlayer  – because who isn’t at least temporarily diverted by Suranne Jones in spats, dazzling her way up people’s petticoats. And other more important societal statements. Thus fortified, I then managed three episodes of Stranger Things before poor Will’s flashbacks to the slug-puking days in The Upside Down came way too close to home.

There’s no hardship I won’t endure for Natasha Lyonne however, so next up was the whole final series of Orange Is The New Black in an almighty two-day binge, leaving me utterly bereft. The fact that there will never be any more OITNB is right up there with all the other garbage things that happened in 2019, presenting me with a serious supply issue in my newly-crafted addiction.

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With my usual pessimism I weighed up previously rejected options on Netflix and struck gold with The Good Place. Given time to warm up it is genuinely hilarious, with characters designed perfectly to fall slowly in love with. The antithesis of ‘gritty’ yet heavy on the thought experiments, it’s quite a comfortable space to inhabit when meaning and mortality loom large. “What amounts to ethical behaviour in this deranged and hyper-complex world? Who the hell knows” is the general theme. This said, don’t expect to feel the same enthusiasm after 53 goddamn episodes. As its circuitous metaphysical plotlines noodle towards their (admittedly strong) conclusion you may reflect that The Good Place is really here to show us that sometimes, you just have to let things die.

Not me though! Or not yet, anyway. We’d always known that there was one potentially curative surgery left in the bag, but that it would be altogether more “Vikings” than the comparatively civilised procedure described above. Whether I would go for it was never in question. Even given the decent chance that it wouldn’t work, if I was fated to spend the rest of my life on disgusting chemo I might as well be doing so with a glamorous limp.

The tumour was nestled in the ‘sciatic notch’, daring anyone hard enough to take a knife to its fiendish hideout among major nerves, blood vessels and renal equipage. Fortunately for me, there was a surgeon mad talented enough to try. Duly warned that this time they would definitely be taking out some bits that I was using, I signed my ballet career away and hopped on the slab in November 2019. I am weirdly fond of getting a general anaesthetic and especially fond of not having cancer, so – call me a psychopath – I was quite excited to just get it done. Hoping not to wake up with a colostomy, I slipped contentedly under.

I woke up monumentally high in intensive care, giggling every time I asked the night nurse to pop my leg back into the bed when it wandered out.  Alas, the novelty and hard drugs wore off all too quickly. No colostomy – yay – but partially paralysed, catheterised, epiduraled, cannulated up to the neck, morphine-stoned and inexplicably pumped with industrial-strength laxatives, I shall leave you to imagine my exhilarating time in ICU.

It’s been a hard road to the new normal via shock, grief and quite a lot of pain -most of which has now gone, though it looks like I’ll be stuck with a certain level of neuropathic ‘interestingness’ in the dead leg. I’ve had fun racing my friends’ babies to their developmental milestones – and I demand equal if not greater amounts of praise for every achievement. It had been a long time since I executed the bum-shuffle but I found it came back quite easily.  By my own assessment however I am now no more incapacitated than the average person who is voluntarily wearing stiletto heels – which in my opinion should come with a free blue badge. Armed with crutches and my shiny new bus pass (a considerable source of joy) I’m confident that I could outpace Kim Kardashian on the savannah, which is all that really counts.

TV is once again my time-killer of choice and, briefly, thank heavens for Pose (which goes perfectly with oxycodone at bedtime) and Detectorists; which in the best possible way is essentially valium in audio-visual form. Watch them both and thank me later.

I’m now on 3 of 4 ‘mop-up’ chemo cycles (an encouraging term which I try not to think too hard about). Global pandemics notwithstanding, a return to life is tantalisingly close and I’m trying not to get too excited in case I get busted back to square one again. I was once all cocky about this not being a cancer blog. Well, fuck my plans, apparently.  Nonetheless, we’re nearly there. Sorry this piece is so long – I started writing it a year ago. If you got this far, thanks for reading. And to those near and far who have been by my side throughout this horror show – thanks for everything.


Five years later

I’m watching Grey’s Anatomy again. In personal terms, this can mean only one thing. Five years after I was first diagnosed with cancer – four of them healthy – the sneaky little fucker came back. Want to hear all about it? Great.

This illness got me into blogging in the first place – a fruitful hobby as it turned out, evolving into the copywriting work that has sustained me since prancing about on stage became a(n even) less practical source of income. I had just settled back into freelancing after moving to Sheffield last year, when I had a call. Routine blood tests (thanks, The NHS) showed a raised level of CEA, the handy protein that can indicate an intruder in the body. It was nothing to panic about, but they’d test again in a couple of months to see if it kept rising.

It kept rising. But in my now-trademark mode of denial I was sure that it would turn out to be nothing serious. Raised CEA can indicate a number of other things including irritable bowel – and having undergone cancer, radiation and surgeries followed by an eventual, enthusiastic return to beer, my bowel had every good reason to be irritable. I had a CT, a PET scan, and an MRI, and I went to Planet Zogg on my 35th birthday and got good and smashed just in case.

Cancer can be a scary word, but it’s an umbrella for so many hugely different conditions and experiences that it’s not worth getting worked up about until you have a clearer idea of what it’s going to mean for you. I’ve always found it helpful to remember that many conditions out there can be a hell of a lot worse for your quality of life (as pointed out also by George Monbiot in his current article about having cancer, which I feel to be an outrageous stealing of my thunder.) First time round I was treated with radiation, minimal chemo and surgery, which was judged to be a complete success. I was reassured that it had been caught ‘in time’ and throughout the whole process I didn’t spend much time worrying about dying.

This policy hit a bump several months later when an ashen-faced consultant called me in to inform me that contrary to their hopes, a follow-up CT showed that my abdomen was in fact now hosting some sort of cancer festival, headlined by multiple liver metastases that were likely inoperable. My least favourite take-home word from that meeting was ‘palliative.’

I spent a fortnight getting used to the idea of a dramatically shortened life-expectancy (during which we planned a shotgun wedding, because what the hell) before good news began arriving in stages. That sinister blob in the pelvis was actually an ovary, unmoored from its new home in my ribcage where they had hitched it to avoid radiation. That bit was some scarring, and that over there was contrast dye filtering through a kidney. There was a surgeon at St. Mary’s who said he’d take on the liver mets. (That’s where we were by our wedding day, which made for a significantly cheerier affair than anticipated.) Then the doctor who biopsied my liver took one look at the Toblerone shapes on the ultrasound and said ‘I don’t think that’s cancer.’ He was right – the biopsy came back clear and the lesions turned out to be a temporary side-effect of treatment. I was completely bloody fine.

… Kind of. I was four years’ worth of fine. Hiding out in that hot mess was a polite little speck of actual cancer, which woke up last year and started quietly regrowing in my pelvic wall.

They can’t irradiate you twice and I had all of it last time, so I started chemo just before Christmas. Like the disease, the treatment varies massively from person to person, but I have found it to be pretty much as advertised. It’s basically the max amount of (magical) poison they can put in you without killing the important bits, and it’s pretty gross. My guts turn to rubber and the world is repellent for one week in two, taking on a sickly smell I can only describe as stale fabric and carrots. Carrots from hell. I become terrified of encountering my own farts. I also become an idiot – chemo brain is totally a thing – stuttering to a blank in the middle of sentences, forgetting to let the cat in and losing important items in a search radius of 1 metre.

My hair’s dropping out but I haven’t gone bald, which assists me in convincing myself that I am fine – though I was kind of looking forward to the dramatic head-shave and I’m just a little sad that I won’t get that souvenir image of me and J together looking like the last eggs in the box. (I could shave my head just for kicks, but having grown out a pixie cut once, I don’t think I can go through the horror of the Terry Wogan phase again.) The promised acne never really got itself going, probably owing to the insanely dry skin that spared me the same fate in my teens. Instead I have developed a bizarre rhinoceros hide, which falls off in what seems like its entirety once a fortnight. My response to unfiltered daylight is now that of Peter from What We Do In The Shadows and my #1 hobby is staring at the inside of my eyelids in complete silence. #2 is watching Grey’s Anatomy.

I gave up Grey’s Anatomy after I got better the last time because it is such an appalling time-hoover. I like it when I am poorly however, for exactly this reason, and because it requires minimal brain intervention and the people are so shiny. I like being annoyed that they never tie their hair up, and wondering how long it’s going to be before they have a plane crash in to the hospital to frame their increasingly preposterous season finales. I like that everyone has managed to become a genius without developing any self-regulation whatsoever and is always crying and yelling deeply unreasonable things at their colleagues – all of whom they have slept with and who face an implausible death (and possible resurrection) at an unknown time in the future. But I think mainly I like the casual way it deals with mortality, flinging it around like it’s no big deal. And maybe just a little bit, I’m reassured by surgeons constantly bursting into rooms and going “I’ll cut it out! What is it? I don’t care! Hand me that icecream scoop.”

Thus (but with less sex and crying, I hope) a real-life genius plans to wield their scoop at whatever’s left in my pelvis after chemo, hopefully leaving me cancer free for good – or for a long while at least. Five years in and at a sobering stage IV, I’m extremely lucky that that’s even possible. I’m also lucky to live in a country where lifesaving care is available to me in the town where I live, that I have a condition that appears to respond to treatment, and that I didn’t have to bankrupt my family or fight an insurance company to fund it. In fact I’ve found in the last 5 years that there’s nothing quite like illness for making you acutely aware of how privileged you are – and that this knowledge will transform life if you let it. In fact it has to. Despite being soundly beaten to it by George Monbiot, I’m hoping to unpick this in future blogs, but I’ll leave it there for now. Thanks for reading. Death to carrots.

Can you train a cat?

Slave that I am to your good opinion, I feel compelled to offer a disclaimer before answering. It would be futile to deny that I’m fond of cats, however my fanaticism may have been exaggerated by a feedback loop of present buying and social media. Thus a single item of cat paraphernalia generates a domino effect whereby friends are encouraged that this is your kind of party and buy you more and more of the same. On last year’s tour alone I acquired a cat makeup bag, cat t-shirt, cat calendar, cat iphone cover, life-size cardboard cut-out cat, floral cat brooch, two books of cat anecdotes and cat cards more numerous than the stars. All of which are delightful – thank you – but allow yourself to be seen with more than one of these items together and people begin to talk. Similarly, reposting of memes on facebook (I’m prepared to shoulder the blame on this one) has led to a proliferation of ‘and thought of you’ tagging so my wall frequently contains nothing but cat videos of variable quality. It makes me look unhinged. (Please don’t stop.)

Anyway. Can you? Train a cat?

If the internet, and my thinly researched bullshit prior to obtaining a cat are to be believed, then the answer is yes. I urge all of you here in the spirit of procrastination to check this action out.

Hell yes.

J has always been a dog person and teased me remorselessly about the treachery of cats: calculating parasites who await only their opportunity to feast on your flesh as soon as you so much as sprain an ankle. He didn’t mean it of course, and I’ll happily snuggle anything furry (to a maximum of four legs) so we split the difference and got a siberian kitten. According to the breed info they’re quite doglike – loyal and obedient – and although I consider the implicit indictment of catkind to be wholly unfair, J was sold and I thought it would be cool to take her for walkies.

I’ll document progress on here as we go, but at the moment I’m hearing a pretty firm ‘no’ from Bijoux in the matter of the harness and lead. Following a major scuffle my limited success was answered with an enthusiastic suicide attempt; kitten duly caught and disentangled, a good deal of apologising was necessary on both sides for equanimity to be restored. I won’t say who bit who.

So the training may have to be postponed until her youthful high spirits have waned. Which, as she grows with alarming speed, doesn’t appear to be on the cards any time soon. Chief among her interests are frantic tunnelling (in the absence of an arctic tundra the underwear drawer is acceptable) and perennial kitten favourite Die-Hard / Spiderman mash-up. She’s also close to nailing the ‘thriller’ move which she practices daily in the bedroom mirror. I’m hoping to incorporate this and her equally impressive ninja cartwheel into the final cut of the training regimen. Quietly optimistic.

Needless to say her every move is judged to be uniquely adorable, particularly by ‘surprise’ cat convert J, who keeps dashing in from other rooms to tell me what she has just done. She dishes out plenty of the good stuff at cuddle time and is genuinely hypo-allergenic, as attested by several of my allergic friends who have rubbed her on their faces to no ill effect. (It’s an enzyme thing.)

There are of course minor misdemeanors. As if to demonstrate, a recent stroll across the keyboard replaced the previous paragraph with the word “juk7” (perhaps she’s trying to communicate with her home planet so I shouldn’t be too hard on her). Electrical cable munching raises the obvious concerns and comes within a wider remit of inappropriate snacking; I’m choosing to interpret her penchant for chewing on human ears as endearing although I promise to revise this stance if I ever find her with one not still attached to a person.

I’d hoped she would be a powerful ally in the coming battle with the seasonal horde of spiders lurking in ever more intimidating ranks outside (and now occasionally inside) the garden / bedroom window, but the crucial stroke of September has fallen and she’s still quite little. I found her lunching on one of the foot soldiers the other day but from the look of things he had died of natural causes – I don’t much fancy her chances against the massive bastard currently lording it on the bedroom ceiling.

Most importantly, though, my new oh-so-fluffy-and-precious friend (the cat not the spider) has made it fun to be stuck at home. If you read my last post you’ll know that’s no mean feat. Animals are just plain good for you, and despite bad press qua (much maligned) cat-ladies, make you considerably saner. It continues to astound me that given only time, nature can build such a thing out of water and a couple of boxes of Go-cat.  Here’s a picture of her looking adorable next to a cup of tea. Nice kitty.

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